I’ve needed to make a phone call to Cec since Tuesday night. I’ve struggled with the idea of doing so as well as what to say, and since we were requesting a phone call back this time, I’ve been trying to determine exactly what the need was. The result was that it’s been going on and on in my head ever since Tuesday and today was the last day to make that phone call before she was out of the office for a week. So we woke up and went online for a little bit, but the nagging need to make that phone call was there. I got up and went to the couch but we ended up curling up while I/we sorted through and prepared for this phone call–basically to get the gumption up to make it and to sound somewhat intelligible. But it clearly was something that was going to take awhile longer than a few minutes and so I went to bed to lay down and try to sort through stuff and prepare to make the phone call. The end result of that is that I was in bed all day, sometimes awake thinking and preparing for it, other times asleep. Argggh is all I can say at the moment about it. It sounds so incredibly stupid when writing it. I don’t even feel like I’ve really expressed why it was so hard and what was so involved in it.
I have only a sliver of recall of therapy on Tuesday (as it has been lately), and it is primarily a few knowledge pieces of information versus actual recall. Shanree showed up and spoke with her. A distraught and angry child showed up and told her about some abuse by the neighbor boy. I did hear through L.J. that Cec asked who it was that was there– and I know that this is probably the first time Cec has done so. She normally just rolls with the switches. I know the girl didn’t tell her name, but L.J. heard the name stated in the thoughts or from someone else inside who answered Cec’s question and I heard through L.J., but I also think I had been pulled closer for that one brief moment and then flung back deeper inside. So I know the name and I thought I was going to post it here, but apparently I can’t just yet. I think it is the shame of the name even though the actual name to anyone wouldn’t appear shameful, but it is the knowledge about the name that we know about that brings about such shame and also a very strong secret keeping need.
Oh yah and another child was really triggered in the beginning of the therapy and this child spoke the strange language that some inside speak. And I only know of this and I saw that there were hand movements by this child, but that is it. I mean I couldn’t describe them to you, just that the body’s hands moved. I have no idea what was said or what it sounded like other than I know it was the ones who speak their own language. I can only imagine what that was like for Cec to witness this. I think it was maybe the first time that one of them came out-front and spoke aloud and communicated. (I know we have shared some examples of their language with Cec, but to my knowledge, they haven’t come out-front and communicated in Cec’s presence or to Cec). I think at first the communication was in general (as if to themselves or to the trigger) but then to Cec since Cec knew exactly what triggered this child and Cec was providing some kind of reassurance and information of the present? (i think) and also making a comment that she didn’t understand what this child was saying and not sure if this child understood her (Cec’s) language, but she hoped so. Something like that. As I write this, I don’t hear anything as if I was recalling it from a memory. It’s just a knowledge based link to information that is generic. And it ends there, both the extent of knowledge and the extent of information.
So all in all, I think we had a really intense therapy session. I’m guessing so at least. We were in a different room than usual for therapy and Cec was engrossed with what was going on and lost track of time and so when the hour was up, there was this knock at the door. The next therapist (and client?) were needing the room. We had a huge startle response and basically therapy ended abruptly and Cec was reassuring us that it was fine and not our fault (even though I don’t think L.J. had said anything about this)… I think Cec must have been observing our behavior and picking up our anxiety or something. By then I was near L.J. a bit more, but still away and trying to come to the front, but struggling to do so. Cec was trying to help us ground ourselves and L.J. said she was trying and so Cec suggested we sit in the waiting room until we had done so. And it did take some time before things had settled enough inside (though not really and truly) and before I could get close enough to the front to be out or at least around the front.
I was reading through what I/we had written and I was remembering that as we were gathering our stuff (journal and Emmie) and putting them into our backpack, that we had intense anxiety about having gone over time and that there were people waiting to get into the room and stuff. So we had this greater need to check to make sure we didn’t leave anything and that nothing was on the floor. The OCD was magnified in its persistence and stuff. We must have been doing it long enough or to some extent of constant checking and staring that Cec did say that we didn’t leave anything, etc. So this is important for me to track and write about because I’ve been noticing this more and more lately– that the greater the internal anxiety about our environment or something inside, the greater the OCD manifests itself in unmanageable and crazy-looking ways.
Julie/s
Dear Julies
keep on taking down those notes and reread em and share em with your T, it will help in bits and pieces as you continue your journey. thinking of you and sending you safe hugs ((((Julies))))
peace and blessings
keepers
Gosh. I can really relate to a lot of your T anxieties. We go to T 2 times a week and it never seems like enough time. We had 2 hours yesterday and 1 hour today. Yesterday we brought some parts who thought they were in the past into the present and it was strange.
I was wondering…have you been to any DID hospitals? We recently went to the one in DC.
Keepers,
Thanks for your thoughts and support. We’ve been sharing most or all of our journal entries with our therapist.
Katie,
We can really relate to it seeming like there is never enough time in therapy. There’s just so many inside who want their time in therapy or who have such intense unmet needs, and just basically stuff I don’t fully understand other than it is very huge to us.
We have tried 2 one hour sessions per week in the past, but they didn’t work as well as 1 two hour session per week. Of course we’ve always wanted more than once a week, but insurance (or lack thereof), finances, and reality can only allow so much. Basically for our system, we have a very hard time ‘letting the walls down’ to do any extensive therapy within a therapeutic hour. Hence, this is why the two hour sessions were most beneficial to us, even though we’ve always struggled getting through a whole week before another therapy session.
For the last several years (maybe 4-5 years?) we’ve only been able to have 1 session per week for an hour. It is NOT enough at all.
We’ve been hospitalized three times. We went to Lake Chelan Community Hospital for the CETR unit (Center for Emotional Trauma Recovery) twice. Unfortunately, they closed that program last year and it is no longer available. They only have a drug/alcohol program available. The other hospital was a general psych unit at a local hospital.
I believe we have needed the hospital several other times in this life, but we didn’t go because we didn’t have any insurance and we resisted the general psych units at the local hospitals. We ended up coming up with other ways to get through the really tough times, but we were a total non-functioning mess. Alas, we survived.
We are struggling right now with internal battles about the need for the hospital again. If we need to be hospitalized again, we would like to go to WIIT (Women’s Institute for Incorporation Therapy). We’ve heard nothing but positive things from various survivors (who are multiple) consistently over the years.
We hope your stay at the hospital in DC was helpful. We’d love to hear about your experience there.
Us
Hi
My therapist said she’d like to refer me to WIIT, but it’s scary to think of an inpatient program. I’ve had, um, less-than-good experiences with general psych places. I’ve been researching WIIT, though, and it seems like a program that could actually help me, but it’s really hard to find anyplace online where people are talking about their experiences there, except for in their own newsletter (enlightenedchoices.com). I like what they have to say in the newsletter, and I’m ordering the guy’s book (and I’m impressed that it’s being sold for only $13 instead of $35 or more like so many books by professionals; it makes it seem like he’s more interested in helping than in making money). I figure reading the book will give me more insight into the program, too.
Anyway, you said you’ve heard nothing but good things consistently over the years… could you tell me about them, please?
wraith
we will respond to this soon, wraith. thank you.
us
Wraith,
Although we can’t speak from experience with WIIT, we certainly do believe that WIIT is very different than general psych places. We have been to the Lake Chelan CETR unit twice (now closed down) and once on a general psych unit locally. I have to say that going to hospitals that have specialized units for trauma survivors and people with PTSD and Dissociative Disorders, that it is A LOT different than a general psych unit. I guess the biggest difference is that general psych units are like “babysitters” whereas specialized units seem to try to have you work on the issues that brought you there so that you actually get some good therapeutic work done in a safe environment.
We knew one very good friend who had been to WIIT several times over the years. She has since passed on due to cancer, and so I am unable to ask her information in order to give you a more thorough review. However, she would have gone sometime in the mid to late 90′s and she had positive experiences. I do recall her once saying that WIIT saved her life (in that it helped her and her system so much). I also recall her system having developed a lot of cooperation and general healing work through WIIT in conjunction with their own healing and out-patient therapy. I think WIIT provided ideas, approaches, viewpoints, etc. to help facilitate her(their) own healing as she(they) ultimately did their own healing. I strongly value her opinion and I know that she wouldn’t have gone to WIIT if it didn’t help her and if she wasn’t respected and treated well.
The other information that I’ve received has been from several other distant friends online that I am no longer in contact with. I’ve also come across people discussing hospitals and the WIIT program on message boards, etc. Basically, everyone has always spoken very highly of WIIT. It’s not so much actual specific information that I can relay to you– it’s just that everyone seems to have benefited from their experience at WIIT. The most recent information that I recall is probably from several years ago. The thing that stands out to me the most is that WIIT has consistently been a positive experience for a handful of survivors that I’ve known in some capacity or read on message boards, and that their experiences cross a broad number of years. So I highly suspect that their program is still just as solid and stable and helpful.
Of course everyone is different and I can’t say for sure that your needs will be met at WIIT. I do however strongly believe (based on the information that I have) that it is a safe and supportive environment where one can do serious therapeutic work and gain skills for coping, managing ADL’s, and living life outside the hospital.
I also bought the book a few months back. We started to read it and even highlight information in it. Our purpose was similar to yours– to acquaint ourselves with the philosophy of their treatment. We also had always wanted to buy it and finally just did it. I am also grateful that it was affordable.
Our system is on the verge of hospitalization at some point in the near future and WIIT is the hospital that we plan on going to. We’re trying to hold off on going or not going at all, but due to various things that I know about our system and what’s going on, I suspect it is going to happen eventually.
One of the things that I do know is that they don’t have individual therapy. Now they might have exceptions or something where you can talk to someone privately, but it is my understanding that the crux of the program surrounds group therapy. I believe they said something about the abuse and things being in secret and isolating and also highlighted the benefits of group therapy. This may be something you might want to inquire further about with them over the phone or email. I also suggest verifying that it is indeed all group therapy (last I heard it was), and under what circumstances can you speak to someone privately or have individual therapy
The other thing is that I think that their program is generally a minimum of 2 weeks and that it is often 3-4 weeks inpatient and then possibly some day hospital time. I recall my friend being gone for about 3-4 weeks each time and another friend was gone for about the same time. I don’t recall if either of them attended the day hospital/IOP afterwards.
Have you requested an informational packet to be sent to you in the (snail) mail? There’s a place on their website where you can request one to be sent to you. This may help provide you with some additional information. I also remember another online friend inquiring about the hospital several years ago and they talked with her on the phone about her needs, etc. She ultimately decided not to attend any hospital, but I got the impression that they were helpful in listening to her and things like that.
I’m not sure if any of this information is helpful as it isn’t all that specific, but hopefully it helps in some way as you gather data to make your decision. If you need to be hospitalized, I do suggest that you go to WIIT. There are a few other hospitals in the U.S. that have PTSD/Dissociative Disorder units around, but I personally would try WIIT before I tried the other hospitals. I think that WIIT (seems that way to me at least) approaches the treatment process differently than the other hospitals and so if WIIT doesn’t work for you, another hospital with a DD unit might help you.
Good luck and we wish you safety and wellness,
Julies